Thank you Kelly! Congratulations!
-Amanda & Eric MajusiakTuesday, November 6, 2012
New HLH Support Website
We are pleased to annouce the newly published HLH Support website --created by Kelly Marsh, mom of HLH and Bone Marrow Transplant Survivor Hannah Marsh. Kelly started a support group on Facebook a few years ago so families could unite, share their stories and support one another through this trecherous journey. With limited resources available for histio diseases, this website is a one-stop-shop for those privy to the HLH world who are looking to recieve a more intimate inside to what they are about to endure. Where there is Hope and Love - there is strength. --And there is plenty of that to around in this group from stories of loss that still empower others to continue to fight and stories of success, like Hanna's, that give us all the will to continue on this journey. This website will connect you to resources such as the Histiocytosis Association and other non-profits with specific goals in funding a cure to HLH. It will guide you through the bone marrow transplant process for HLH patients. There you will find a link to the private Facebook group page. We hope you will find comfort in this site. Without Kelly's efforts to organize the support group the world would be a much colder place for HLH patients and their families. I think we can speak for the group when we say her mother's touch has touched us all.
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Okay, you seriously have brought me to tears by posting your update. This website has been a work in progress and a vision that finally came to fruition. To see all this hard pay off, and then to know that we've helped so many others along the way, is a dream come true! No one should have to feel alone in this, and we're all along for the ride.
ReplyDeleteMuch love and hugs,
Kelly & Hannah
XOXOX
It is our pleasure and we are happy to support your efforts anyway possible. <3 We wouldn't be where we are without you and our HLH family.
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