Eric Majusiak's Journey with HLH - Hemophagocytic Lymphohistiocytosis, a rare and potentially fatal blood disorder of the immune system. Visit www.EricsJourney.org for more information
There's a huge gap here because during this time Eric was medically sedated and paralyzed. He was placed on something called ECMO. ECMO is basically a process like dialysis, but for your lungs. It filters the blood out of your body and through a tube into an artificial lung machine that is outside of the body and adds oxygen and removes co2 before reentering back into the body.
No one could ever explain what this rash was but it came and went over 5 or 6 days. It seems as though a lot of people who get HLH get it at some point.
One minute I was hot. The next minute I was cold. Nothing helped me get comfortable. I barely had a fever (99.7 highest) and was having severe joint pain. I had my wife bring the antigravity lounger inside! That was a loooong night!