Hristijan made it to Germany! It is believed he has Wiskott Aldrich syndrome.
It's very rare and the treatment is same as HLH. Also most of the symptoms are same.
Hristijan's family thanks you for all of your continued support.
"A Bone Marrow Transplant is planned for the middle of January. Please pray that they will find 100% compatible match donor. Hristijan still has chance's", says his father.
Hristijan is also fighting Klebsiella, a very tough bacteria.
BREAKING NEWS: The health department in Macedonia has just granted Hristijan coverage and he will be transported to Grmany for treatment next week! Please continue to pray for safe travels and comfort during the treatments he's about to endure. This will be the first time Hristijan has left the hospital since he was born on January 4, 2012. He is still waiting to transfer as of 11/6/12. If all goes well Hristijan should be transferring to a hospital in Germany for treatment next week.
We wanted to take a moment to share a story of a little boy fighting for his life. His father is doing a great job, but has hit some hard obstacles trying to get him treated for HLH. Hristijan will be 9 months old soon and he needs all your prayers to help guide people to him or help him get from Macedonia to Germany where a doctor has agreed to treat him. Please read his story by his dad and share for him. You could save his life. Currently PayPal does not work in Macedonia, but if you know of an organization that can help send funding or send it to the hospital in Germany, please let us know.
--Eric & Amanda
Hristijan's Story
Told by his dad
On 4th of January i thought i'm luckiest man on earth.I got a son..But then the doctor come and told me my son is ILL he has some infection. I thought ok he is strong like his father.And they took him to intensive care and my world just crash down.Since that day My son and my wife are in the hospital and i never have any day outside of hospital with him.The doctors in our country couldn't find what is wrong with him.
First he was born with sepsis then burkholderia pesudomallaeu bacteria from hospital.After that there was fever, stomach with fluids and alot of diagnosis that were not correct. Pompey disease,CVID,SVID,LCH,FHLH, And now they are telling that he has HLH but unknown triggered. And there is possibility he has NOMAD syndrome.He has vomiting blood and blood was coming out of his rectum.
BUT HE DOES NOT GIVE UP. HE IS ALIVE
He needs 350000 euros(431000USD) WHICH my health insurance will cover only 80% so i need to pay 70000 euro(86200USD).The money that I dont have and we are from a country where most of the people are poor.He needs BONE MARROW transplant to live.Your donation will be for saving another human being.
UPDATE: Hristijan's insurance company has decided to deny his coverage for his to go to Germany to recieve treatment. If you know of an organization that can help him please contact at EricsHLHJourney@GMail.com
UPDATE 10/30: You can find out how to help below or check it out on Hristijan's Facebook group his afther set up. Currently they are working to set up a paypal account, but you can donate directly to his benefit account that has been set up. Treatment has been denied and they cannot travel to another country without assistance or full payment up front. This is their only chance unless an organization can come forward to help them.
Article featured in his country, Macedonia. Google Translate allowed me to read these in English pretty well. for ease I used google chrome which translated the whole page.
http://www.donacii.mk/2012/10/30/apel-za-pomosh-na-hristijan-todorovski/
VIDEO: http://www.sitel.com.mk/350000-evra-za-zhivotot-na-devet-mesechniot-hristijan
VIDEO: http://www.sitel.com.mk/350000-evra-za-zhivotot-na-devet-mesechniot-hristijan
