Team Eric to Travel to NYC

We are just two weeks away from joining non-profit Liam's Lighthouse Foundation(LLF) and many others who continue to fight for a cure for Histiocytosis!

The weekend event will take Place in the heart of New York City! We will be participating in 3 of the 4 days of events to take place July 20-23. Our itinerary will include a Meet-and-Greet event at the Marriott Marquis in times Square on Saturday night to kick off the weekend. Sunday morning we'll gather with family to walk in the 1st Annual Liam's Lighthouse Foundation 5k to Fight Histio which will take place along the Hudson River. Team Eric and all the other teams that will join us there have raised over $65,000 this year since the fundraising started in early 2013. July 22nd  we will be standing outside the Today Show which broadcasts on LIVE TV! We along with other warriors and families who have lost a loved one will hold posters of the faces of Histiocytosis! This will be the end of our NYC trek, but LLF and others will continue awareness efforts outside of Good Morning America in July 23. 

It is truly amazing how just a few years ago Michelle Schultz and two others started out on this journey and now dozens will flock the streets of New York wearing blue with pride; to support, to educate, to FIGHT BACK!

To learn more about Team Eric's fundraiser or Join Team Eric visit:


Liam's Lighthouse Foundation 5k to Fight Histio Fundraising Page
http://www.firstgiving.com/LiamsLighthouseFoundation/5KTOFIGHTHISTIO/fundraisers

This day in 2012-Valentine's Day

As a culture we honor milestones throughout our lives: birthdays, holidays, graduations, memorials, and even death. The first year of marriage holds a new start for each day that passes on that journey. And on our journey as a married couple we lost many days of milestones to celebrate, often times close to memorials and death.

You cannot put a price on love, but the government has put a price on how long we have to love those with rare diseases. We are fortunate to have been blessed with love from the physicians who treated Eric at Temple. Just 13 days after going to the ER and 3 days after transferring into Temple I said my first 'Happy Valentine's Day' to someone I spent nearly 11 years of my life with and yet they barely knew how loved they really were and how much live would be given to them in the upcoming weeks. Eric was on almost full ventilator support. His lungs were on the verge of failing if it weren't for the machines. He had begun sedation that would last virtually 2 months and responses were weak with just the notion of muscle movement, but not a word or eye-contact. An occasional squeeze of the hand ever so faintly dwindled in the days to come.

Milestones are merely a way to make marks on life when were too busy to notice the rest of the days of the year. For us, Valentine's Day has never been important. It's just another day to be forced to buy something to show your love. We've always celebrated life and how lucky we are to have each other to love. We could never repay the unconditional love we received and still receive from the physicians, nurses, CNAs and supporting staff at Temple University Hospital in Philadelphia.

So many have lost their LOVEs and we can never replace that, but we can help keep others here with us if we love one another enough to help a stranger. We have been so humbled by the overwhelming support of the other Histio families. We have supported other families and they have supported us even after they've lost their LOVE.

Please help us LOVE another HLH/Histio family with opportunity for cures to these awful diseases and memorialize those who gave their life to HLH with a $10 donation to #TeamEric. You will find the donation box on the right column .

We are thankful for organizations like Liam's Lighthouse Foundation, the Histio Association and the Akin family, for the quote and book they wrote "Love Triumphs Grief" will be a testament to families we have grown to he a part of- for this will be their first valentines day without their child, mother, father, husband, wife, sibling, grandparents extended family and friends.

May you be able to find love every day, not just on this holiday. Let us open our hearts to love all who need love.

Amanda