Thank you Kelly! Congratulations!
-Amanda & Eric MajusiakEric Majusiak's Journey with HLH - Hemophagocytic Lymphohistiocytosis, a rare and potentially fatal blood disorder of the immune system. Visit www.EricsJourney.org for more information
Showing posts with label HLH Support. Show all posts
Showing posts with label HLH Support. Show all posts
Tuesday, November 6, 2012
New HLH Support Website
We are pleased to annouce the newly published HLH Support website --created by Kelly Marsh, mom of HLH and Bone Marrow Transplant Survivor Hannah Marsh. Kelly started a support group on Facebook a few years ago so families could unite, share their stories and support one another through this trecherous journey. With limited resources available for histio diseases, this website is a one-stop-shop for those privy to the HLH world who are looking to recieve a more intimate inside to what they are about to endure. Where there is Hope and Love - there is strength. --And there is plenty of that to around in this group from stories of loss that still empower others to continue to fight and stories of success, like Hanna's, that give us all the will to continue on this journey. This website will connect you to resources such as the Histiocytosis Association and other non-profits with specific goals in funding a cure to HLH. It will guide you through the bone marrow transplant process for HLH patients. There you will find a link to the private Facebook group page. We hope you will find comfort in this site. Without Kelly's efforts to organize the support group the world would be a much colder place for HLH patients and their families. I think we can speak for the group when we say her mother's touch has touched us all.
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